LAM Trust Director and Member of the Board of the New Zealand Organisation for Rare Disorders, Bronwyn Gray will attend the 4th International Conference on Rare Diseases and Orphan Drugs ( ICORD) being held in Washington ; May 22-24th.
ICORD 2008 is dedicated to continue to develop constructive international collaboration resulting in true advantages for patients with rare disorders. The meeting also celebrates the 25th birthday of the American National Rare Disease Organisation NORD.
The ICORD meeting follows on from Bronwyn Gray’s attendance at the annual LAM Foundation of America’s Conference in April in Cincinnati and her attendance at the World Wide LAM Patient Coalition held alongside the main LAM science and family conference in April. There are now 16 member nations of the worldwide LAM patient coalition and each year this number grows as more patient organisations join the fight to find a cure for LAM.