International Conference on Rare Diseases

LAM Trust Director Bronwyn Gray attended the first ever International Conference on Rare Diseases which was held at the Karolinska Institute in Stockholm, Sweden, 14-16 February 2005.

The conference covered diagnostics, prevention and treatment of rare diseases and focussed on improved possibilties for development of clinical trials and novel treatments for rare disorders.

Speakers and participants were invited from acadaemia, the pharmaceutical industry, patient organisations, the European Commission, The US National Institutes of Health and other policy making organisations.

Bronwyn attended the Stockholm meeting with the Executive Director of the NZ Organisation for Rare Disorders, John Forman, from Wellington.