Welcome to the New Zealand LAM Charitable Trust
    If you can't breathe, nothing else matters

The NZ LAM Trust is registered with the NZ Charities Commission: CC20304.
The Trust is a not for profit rare lung disease research and patient support group for New Zealand women diagnosed and suffering with Lymphangioleiomyomatosis.

Established in Auckland in 1999, the New Zealand LAM Trust is one of a number of patient and family organisations around the world working alongside scientists, clinicians and researchers, raising awareness about the disease Lymphangioleiomyomatosis and helping raise funds to support research into its cause and ultimately its cure.

What is LAM ?

LAM is a rare, progressive lung condition affecting women generally between the ages of 25 to 45.
LAM, first described in the medical literature in the 1920's has recently been described as a slow moving metastatic neoplasm. Symptons include breathelessness, chest pain, cough, and lung collapse.

» OUR CHALLENGE

  • To help to transform the vision of a future without LAM into a reality
  • To intensify our efforts to raise funds for scientific research
  • To educate general practitioners to recognise early symptoms of LAM
  • To identify and provide support for every LAM patient in New Zealand.

» OUR OBJECTIVES

  • To provide support for persons diagnosed with LAM and their families
  • To become the source of information for persons affected with LAM
  • To publish educational materials on LAM for all interested individuals
  • To raise awareness of LAM, to improve early detection and diagnosis
  • To maintain a database of persons throughout the country who have LAM
  • To foster and fund research aimed at finding a cause of and cure for LAM and ultimately, preventative measures
  • To sponsor conferences, workshops and scientific meetings related to LAM
  • To raise money to support the goals.

With support for New Zealand women suffering from LAM and fundraising for research as the central focus, the New Zealand LAM Trust is committed to the above challenges.


October 2014 Update - Tonio to run the Auckland Marathon for LAM.

For the second year in a row Antoine Salles, Chef and owner of French Bistrot "Touquet" in O'Connell St in Auckland City, will run the Auckland Marathon to raise funds for LAM.

Tonio will run the full Marathon on behalf of women suffering with the rare lung disease Lymphangioleiomyomatosis... LAM.
Please support Tonio here by making your donation which will go in full to the University of Auckland's LAM Research Programme.






LAM Chat with Dr Frank McCormack in Chicago

LAM Trust Director Bronwyn Gray chats to Dr Frank McCormack at the LAM Scientific and Patient Conference in Chicago 28-30 March 2014.


DONATE ON LINE:

Thank you to those supporters who have donated towards our ongoing research programmes by using the online donation system on our website.



Contact us:

Director: NZ LAM Trust
Bronwyn Gray
Auckland
09 376 4936
Secretary: New Zealand LAM Trust
Jan Barrett
Auckland
09 3786 605
General Practitioner Advice
New Zealand LAM Trust
Dr Christine Forster
Freemans Bay Medical Centre
09 378 6653

Launching the new series
LAM for GPs





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