Welcome to the New Zealand LAM Charitable Trust
If you can't breathe, nothing else matters
The NZ LAM Trust is registered with the NZ Charities Commission: CC20304.
The Trust is a not for profit rare lung disease research and patient support group for New Zealand women diagnosed and suffering with Lymphangioleiomyomatosis.
Established in Auckland in 1999, the New Zealand LAM Trust is one of a number of patient and family organisations around the
world working alongside scientists, clinicians and researchers,
raising awareness about the disease Lymphangioleiomyomatosis and helping raise funds to
support research into its cause and ultimately its cure.
What is LAM ?
LAM is a rare, progressive lung condition affecting women generally between the ages of 25 to 45.
LAM, first described in the medical literature in the 1920's has recently been described as a slow moving metastatic neoplasm. Symptons include breathelessness, chest pain, cough, and lung collapse.
» OUR CHALLENGE
To help to transform the vision of a future without LAM into a reality
To intensify our efforts to raise funds for scientific research
To educate general practitioners to recognise early symptoms of LAM
To ensure that women get a timely and correct diagnosis
To identify and provide support for every LAM patient in New Zealand.
» OUR OBJECTIVES
To provide support for women diagnosed with LAM and their families
To become the source of information for women affected with LAM
To publish educational materials on LAM for all interested people
To raise awareness of LAM, to improve early detection and diagnosis
To maintain a database of persons throughout the country who have LAM
To foster and fund research aimed at finding a cause of and cure for LAM and ultimately, preventative measures
To sponsor conferences, workshops and scientific meetings related to LAM
To raise money to support the goals.
With support for New Zealand women suffering from LAM and fundraising for research as the central focus, the New Zealand LAM Trust is committed to the above challenges.
March 2015 Update - Film Night Fundraiser Thursday 26th February a success.
Professor Merv Merrilees
Thanks to all the LAM Trust supporters who came to the Movie Night Fund Raiser at the Bridgeway Theatre during Rare Disease Week at the end of February.
The Movie was sold out and the Trust raised $2,700.00 for the event; this amount will go in full to our Research Programme at the University of Auckland. Professor Merv Merrilees, Principal LAM Research Leader spoke briefly to the audience about the new and exciting LAM Collaboration between the Universities of Auckland, Philadelphia and Seattle.
Special Thanks to Carole Beu, of the Womens Bookshop on Ponsonby Rd, who donated the wonderful Book Raffle which was won by long time LAM Trust supporter Wendie Hall.
The 20th International LAM Science, Research and Patient Conference will be held in Chicago 26-29 March and the New Zealand LAM Trust will be represented by Director, Bronwyn Gray from Auckland and Board member, Jen Shieff from Turangi
November 2014 Update - Auckland Marathon.
Congratulations and thank you to our Marathon Runner Antoine Salles, Chef and owner of French Bistrot "Touquet" in Auckland City. Antoine ran the full Marathon in 4 hours, 2 minutes... and raised $3,100 for the LAM Trust.
Thank you to supporters of the LAM Trust for their donations and support for Tonio's great run! All monies donated have been tagged for our ongoing reasearch work at the University of Auckland.
LAM Chat with Dr Frank McCormack in Chicago
LAM Trust Director Bronwyn Gray chats to Dr Frank McCormack at the LAM Scientific and Patient Conference in Chicago 28-30 March 2014.
DONATE ON LINE:
Thank you to those supporters who have donated towards our ongoing research programmes by using the online donation system on our website.