LAM Patients and their families in New Zealand and medical and lay communities wanting up to date LAM research, patient stories and information here and around the world are invited to look at the latest information from the newly created Link "RARE CONNECT".
The New Zealand LAM Trust is a member of Rare Connect.
LAM Community on RareConnect This is an opportunity for LAM patients, families and interested others to join and connect with new information and to be in contact with the fast growing global LAM Community.
We are grateful to the work of Robert Pleticha of the European Rare Disease Organisation and support group" EURORDIS" and to Iris Bassi, founder of LAM Italia.
The next international meeting of the European Respiratory Society will take place in September 2014 and LAM will feature highly on the programme.
Patients are invited to join the Global LAM Community and to share information, read the latest scientific papers, and hear patient's stories from around the world.
Start donating to the LAM Trust for the LAM Awareness Day:
April 2014... LAM Chat with Dr Frank McCormack in Chicago
LAM Trust Director Bronwyn Gray chats to Dr Frank McCormack at the LAM Scientific and Patient Conference in Chicago 28-30 March 2014.
Postgraduate Scholarship - lymphangioleiomyomatosis (LAM) pathogenesis - in Sydney
Sydney's premier respiratory research team, located at the Woolcock Institute of Medical Research, are looking for a PhD student with a passion for respiratory research to join our team to investigate the pathophysiology of LAM.
This project will be part of a joint endeavour between the University of Sydney, Australia and our collaborators at the University of Auckland, New Zealand and will be supervised by Senior Researchers at both Universities.
The scholarship stipend is AU$25,000 pa (tax exempt) with an opportunity for additional support to attend national and international conferences subject to satisfactory progress.
The New Zealand LAM Trust announces a new three year LAM research and investigation collaboration involving the Universities of Auckland and Sydney.
Professor Merv Merriees from Auckland and Professor Janette Burgess from Sydney will work on the new project due to begin in the first half of 2014.
The work will involve the funding of a PHd student and the project will take place at both Universities.
Funding for this exciting new project will be shared by the New Zealand LAM Trust and by the University of Sydney.
International Rare Disease Day will be on Friday 28 February.
Along with thousands of rare disease support groups, the New Zealand LAM Trust supports this global initiative and welcomes on line donations
Registration is now open for the 17th International LAM Scientific and Patient Conference ; this year the meeting will be held in Chicago, Illinois :
March 27 - 30 2104.
The 2014 International LAM Science, Research and Patient Conference will take place in Chicago USA: March 28 - 30
All LAM researchers, patients and their families are invited from New Zealand to join more than 400 visiting patients, physicians, researchers and supporters from the USA, Canada Europe, South America, Australia and Asia in Chicago next year.
So Save the Dates and further details will be posted about the venue and the scientific and patient programmes.
DONATE ON LINE:
Thank you to those supporters who donated during September towards our research programme by using the online donation system on our website.
These funds will be used to support funding for a Summer Studentship at the University of Auckland.
Secretary: New Zealand LAM Trust
09 3786 605
General Practitioner Advice
New Zealand LAM Trust
Dr Christine Forster
Freemans Bay Medical Centre
09 378 6653
Welcome to the New Zealand LAM Charitable Trust
Established in Auckland in 1999, the New Zealand LAM Trust is one of a number of patient and family organisations around the
world working alongside scientists, clinicians and researchers,
raising awareness about the disease Lymphangioleiomyomatosis and helping raise funds to
support research into its cause and ultimately its cure.
» OUR CHALLENGE
To help to transform the vision of a future without LAM into a reality
To intensify our efforts to raise funds for scientific research
To educate general practitioners to recognise early symptoms of LAM
To identify and provide support for every LAM patient in New Zealand.
» OUR OBJECTIVES
To provide support for persons diagnosed with LAM and their families
To become the source of information for persons affected with LAM
To publish educational materials on LAM for all interested individuals
To raise awareness of LAM, to improve early detection and diagnosis
To maintain a database of persons throughout the country who have LAM
To foster and fund research aimed at finding a cause of and cure for LAM and ultimately, preventative measures
To sponsor conferences, workshops and scientific meetings related to LAM
To raise money to support the goals.
With support for New Zealand women suffering from LAM and fundraising for research as the central focus, the New Zealand LAM Trust is committed to the above challenges.